Monday, January 24, 2011

Bronchoscopy and Endoscopy

Wow! It's been a month since I have been on here!  I just can't seem to find the time (or ambition) to write here.  Sometimes it's too hard to write here or read all of your blogs.  Its much easier not visiting the reality that this disease really is. 

Cayden had his bronchoscopy  and endoscopy on  January 5th.  The results of his cultures were great--no growth!  We are so happy with this news.  They said his lungs looked pretty good, some mucous there but not super thick and not in large amounts--more good news.  The only thing that they found, was that Cayden seems to be missing the middle lobe of his right lung.  When they tried to get there with the scope, they came to a dead end.  There is really no way to see if he is actually missing it unless he has a CT.  The doc also said that sometimes it is there, just other vessels grow around to supply it with oxygen.  She also said that it can show up in kids who have upper respiratory abnormalities like Cayden.  Because he has no problems in that area so far, no need for a CT until he is older. 

Cayden's endoscopy was also successful.  Everything looked as it should, just lots of bile.  But overall, his GI doctor was pleased.   

The fasting and early morning were the hardest for Cayden.  His surgery was scheduled for 7, but we had to be there at 6.  Cayden didn't get in until 8, so he had been fasting for 8 hours at that point.  He was upset to say the least.  He cried straight from the moment we got to Children's until we got him a bottle in the car at noon.  He was so irritable and exhausted he just screamed. It was pretty terrible and I am so thankful Phil was there too.  It made all the difference.  I should say that the only time he didn't cry was when the OR nurse took him away from me to go into the operating room.  Strange for the kid with extreme separation and hospital anxiety!

I am happy it's done and we can move forward now knowing that he is bug free.  No psuedo, no mrsa, nothing!