Sunday, March 6, 2011

Cayden eats!

Lately I have been trying extra hard to get Cayden to eat but also still healthy and homemade.  Because he has been sick, it has been a challenge to get him to eat at all.  I have been trying lots of new recipes that we all can eat, but modifying Cayden's portion to add all the extra calories, fat, and salt that he needs.  I came across a great food blog that referred to me by my sister:   It is filled with lots of kid and adult friendly ideas to get your kids eating.   So far, everything I have tried from it is super easy and delicious too!  

Cayden loves the Nutella Pancakes with Raspberry sauce and the Spinach pesto.  We tried the chili, but he didn't like that so much, but I loved it!  

{Spinach and Pistachio Pesto}

{Nutella Pancakes with Raspberry Sauce}

Saturday, March 5, 2011

where we've been

Cayden has been sick.  Sick since the end of january.  It started as a cold with congestion and runny nose and stayed like that until about 2 weeks ago when it turned into a nasty cough.  That progressed into a lethargic little boy that would eat, drink, or play.   I called the respirologist on call and they put him on Bactrim.  5 days later, still sick, worse even.   Called again and we were advised to go to the ER in town and after a long wait, antibiotics were switched to cefprozil.  Two days later, cough seemed to be gone and Cayden was relatively happy when I left for work. Upon arrival home, found out that Cayders had a fever and was vomitting.  The lethargy was back and the fever never left.  So, last wednesday we went into children's and found out Cayden has lost a little weight and his o2 sats were between 80-85 which is not great.  He was given steroids orally and with ventolin and rechecked and the sats were about the same.  Cayden also had an xray and it didn't show pneumonia (thankfully) and it was decided that he should be admitted.  I practically begged them not to, and his doctor finally agreed with me that it was okay to send us home as long as I promised to drive like heck to the city if something happened. 

Soooo, our house has been sleepless and teething hasn't helped the sleep situation either....Cayden  has sprouted 4! new teeth in the past 2 weeks.  Cayden only wants to sleep in my bed and wakes every 1/2 hour.  I am exhausted.

I am however, working on Cayden's Great Strides 2011 video and will register the team soon.  Yay!

Monday, January 24, 2011

Bronchoscopy and Endoscopy

Wow! It's been a month since I have been on here!  I just can't seem to find the time (or ambition) to write here.  Sometimes it's too hard to write here or read all of your blogs.  Its much easier not visiting the reality that this disease really is. 

Cayden had his bronchoscopy  and endoscopy on  January 5th.  The results of his cultures were great--no growth!  We are so happy with this news.  They said his lungs looked pretty good, some mucous there but not super thick and not in large amounts--more good news.  The only thing that they found, was that Cayden seems to be missing the middle lobe of his right lung.  When they tried to get there with the scope, they came to a dead end.  There is really no way to see if he is actually missing it unless he has a CT.  The doc also said that sometimes it is there, just other vessels grow around to supply it with oxygen.  She also said that it can show up in kids who have upper respiratory abnormalities like Cayden.  Because he has no problems in that area so far, no need for a CT until he is older. 

Cayden's endoscopy was also successful.  Everything looked as it should, just lots of bile.  But overall, his GI doctor was pleased.   

The fasting and early morning were the hardest for Cayden.  His surgery was scheduled for 7, but we had to be there at 6.  Cayden didn't get in until 8, so he had been fasting for 8 hours at that point.  He was upset to say the least.  He cried straight from the moment we got to Children's until we got him a bottle in the car at noon.  He was so irritable and exhausted he just screamed. It was pretty terrible and I am so thankful Phil was there too.  It made all the difference.  I should say that the only time he didn't cry was when the OR nurse took him away from me to go into the operating room.  Strange for the kid with extreme separation and hospital anxiety!

I am happy it's done and we can move forward now knowing that he is bug free.  No psuedo, no mrsa, nothing!