Tuesday, March 30, 2010

Keeping Busy!

I have been way too busy with life to blog regularly.  At the beginning of March, I started back at the hospital to finish the last bit of my practicum.  I am currently working around 4-5 days/week so it's been pretty hectic trying to get back into a routine.  By the end of the day I am so exhausted that I just crash with Cayden on my bed.  I feel like a zombie, sometimes I don't even remember waking up in the middle of the night with Cayden.  When Phil is gone, I co-sleep with Cayden so I just feed him in my bed.  Lately I have been waking up to enzymes in the bed, sometimes stuck on my face?  I hope at least some make it into Cayden's mouth.
I also am loosing everything, from my wedding rings, cameras, and my glasses!

It's not all bad though!  I really enjoy getting out of the house and having other adults to talk to! I also think it's good for Cayden to spend some time and build relationships and trust with others.   Cayden is doing well with everything, except he hasn't been too interested in taking his bottle. It's really important for me to continue breastfeeding  as long as possible so I pump lots during the day.  He only eats a little bit while I am gone and then he seems to be catching up when I am home, eating about every 2 hours.

I am doing really good with getting all his treatments in too.  I get up at about 6:30 and we do physio for 1/2 an hour and then I shower and Cayden plays in his vibrating chair or on a blanket on the floor.  I have breakfast and get my lunch made and by now it's about 8.  I give Cayden his ranitidine, aquadeks, vitamin d, urso, antibiotic, enzymes and then nurse him.  After that we try some cereal and then the babysitter arrives and I go to work!

{Cayden and I at the dinosaur Museum}

{A tired Cayden playing while Mommy eats breakfast}

{Trying some sweet potatoes for the first time}

Great Strides 2010

On May 30, 2010 we will be taking part in the Canadian Cystic Fibrosis Foundation's  Great Strides walk.  We will be walking on Team Cayden with our family and friends in Calgary, Alberta.  Our team goal is $1000 and so far we have raised $415!!!! Awesome!

All money raised will support the work of the Canadian Cystic Fibrosis Foundation. The Foundation funds CF research and it provides supplementary support for CF treatment programs at 40 Canadian CF clinics and five transplant centres.

To give you an idea on how the Canadian Cystic Fibrosis Foundation is directly helping Cayden:
-The foundation pays for ALL of Cayden's antibiotics until he reaches the age of 18....So far this has totalled to about $500.  Because Cayden will be on antibiotics for most of his life, and some of them can get very pricey, this will help out a huge amount.

I have been so taken aback by the generosity of our donors so far!  Some are friends, others are family, some have even been complete strangers. Jen from Mommy Brain featured Cayden's Great Strides last week, check out her fantastic blog.  She always has lots of good contests and her daughter Jane is super cute!   Also, our Facebook group, TEAM CAYDEN has 70 members!  There is so much love for our little Cayden! 

Click here to visit our Great Strides page to donate or to join our team!


Wednesday, March 10, 2010

5 Months of Cayden

Happy five month birthday Cayden! 

{click to enlarge}

Sunday, March 7, 2010

Jolly Jumpin'

Cayden's Clinic Visit

We had Cayden's clinic on the 2nd. Cayden did soo good as always, giving lots of smiles to everyone.  Our biggest concern  were his stools and his liver.  Last week his stools were really mucousy, they basically looked like yellow or clear snot. Cayden was also straining lots and having even worse prolapse than before.  We increased his enzymes and are giving it a few days to see if that helps.  So far he hasn't had any prolapse yet.

Cayden's liver enzymes are still really high and his copper levels are showing up strange.  The gastro doc mentioned this shows up in something called Wilson's disease.  She wanted to repeat his labs again to be sure, please pray that Cayden can catch a break and his copper levels show up normal. 

Cayden's weight has actually decreased since his immunizations and 4 month check up, it could have been different scales though.  His weight at clinic was 6.44 kg which is about 14.2 pounds. 

The Dietician wants us to start solids in a couple of weeks, once his stools get back to normal. I am excited to start but breastfeeding just started to get easy!